So there is this baby and she turned one last week, and her name is Getty, and she has Spinal Muscular Atrophy Type 1 (SMA1).
While baby’s first year for most parents is full of typical challenges like teething and night wakings, Getty’s family has dealt with much much more… like a diagnosis that there is no cure or treatment for, that leaves those diagnosed with a life expectancy of no longer than 2 or 3 years.
You can understand, then, why this first birthday is so special, and why I hope many will help Getty and her family celebrate by buying Lullabies For Getty , a truly beautiful album of modern lullabies, written and recorded by The Damnwells. All proceeds will go to the Getty Owl Foundation, whose mission is to help find a cure for SMA.
Wouldn’t it be great to get Lullabies For Getty on the Itunes kids charts by tonight? What a fantastic show of support and birthday present that would be for baby Getty! I know we can do it. Please, help spread the word! Purchase the album, tell your friends, support Getty, and count your blessings every night as you rock your babies to sleep to the sweet sound of support for SMA. If you can’t purchase the album, please consider liking them on Facebook, following them on Twitter, and spreading the word with the hashtag #gettyowl.
Thanks for being awesome. (And a huge shout out to Morgan at The818 for being the Queen of Awesome for organizing all of this!)